I really love the fellow that sees Emma. She is bubbly, friendly, and sweet. The attending doctor is awesome and full of knowledge, but less warm and fuzzy. Anyhow, they both checked Em over. We all agreed that we see some progress from where she was eight weeks ago, but not enough improvement. The methotrexate that Emma has been on for six weeks now is typically given for several months before doctors want to move on to more aggressive treatment. We're going to increase her dose and do it for two more months before we decide on the next step. I was also told that our physical therapy is lame and we need to do a lot more than just encourage Emma to play in certain positions. We need to take it up a notch and manually stretch and push her stiff joints. It's not my, or Emma's, favorite thing.
As much as I want the mtx to do the trick, I am preparing myself for the likelihood that it will not be enough. So, I'm starting to research and pray about our next choices.
- Put her under anesthesia and inject a steroid into her joints. This works really well for some people and can immediately get rid of inflammation. The problem is that it's only possible on bigger joints, so there's no way it could be done to help her tiny sausage fingers. Plus, I'm not too keen on anesthetizing my wee-bitty child.
- Oral Prednisone. It will help her feel better overall, with decreased inflammation, but it has icky side-effects.
- Enbrel. A twice a week injection that we would give at home. A little more scary than the mtx, because it's newer and has some really horrible, but very rare, side-effects. It's a biologic, which I think is pretty cool.
Anyhow. Emma and I enjoyed the beautiful day in S.F. by eating lunch in Golden Gate Park, waving to numerous people and dogs, and taking a walk. Then we came home and I went out to get a pedicure and manicure with my long-time best friend. Not a bad day.
Today was even better. The whole family drove to Santa Cruz for a day of fun! We found a sandy beach, laid out a blanket, and enjoyed the ocean air. The waves were crazy because of a storm on the other side of the planet, and high tide came in swiftly, soaking my pants in the process. I spent the next couple of hours looking really stylish in my husband's orange board shorts.
Emma had a blast digging in the sand, walking along the water, chasing birds, and getting sand everywhere. The sun even decided to come out and play! Barry found three sand toys to add to Emma's collection. I enjoyed watching Emma have so much fun. I also found a few minutes of peace to lie back, close my eyes, and just listen to the ocean.
Our adventure wrapped up with a delicious crepe lunch, here, with my favorite Eric in the world.
I'd say it was a perfect day. What do you think?